As caregiver, one of the most
difficult things for me was keeping everyone informed about my wife’s
progress. We would come home from a
grueling day of medical appointments or tests to sometimes find as many as 14
messages on our answering machine from well-meaning people that truly cared,
who wanted to know “How is she feeling?” or “What did the doctor say?” or
“What’s next?”
The last thing I felt like
doing was returning all of those calls, telling the same stories and answering
the same questions over and over again. I had too much to do as it was! And, on top of that, was all of the things that go with returning calls:
“telephone tag,” toll charges, time-zone differences… ahhhhhh! I can feel the stress building just writing
about it!
On the other hand, it was
important to keep these people updated on her progress because they really
cared and certainly didn’t mean to cause us more stress.
What to do? The answer can be summed-up in a single
word: email.
Being basically a computer
geek, I created an email list of all of our friends and family and sent them
progress reports once a week or so. The
phone calls stopped immediately: it was
terrific! Then, I posted the reports on
my personal web site so that people could “catch up” if they were added to the
list after the fact. It was easy for me
and everyone loved it because they felt like they were “in the loop.”
The main point here is this: in
order to reduce your stress, find a way to keep everyone informed without
spending a lot of time on the phone. You
save time and energy, both of which are probably in short supply anyway, and
you can keep many more people informed than by doing it manually.
The Patient/Partner Project
provides just such a service for those who cannot create their own email list
or post to their own website. It is
called “Private Online Progress Reporting” and it is provided free of
charge. Here’s how it works: you can
create a private email list and then post progress reports. Each time you post a report, the system
automatically sends an email to everyone on your list inviting them to come to
the site to read what you’ve written. It
is completely private and secure: no one can read your reports unless they
already know the unique ID that you created.
(You can also create your own personal journal or blog on the Pink-Link website. Choose "password protected" from your member profile page. After your friends and family register on Pink-Link, give them the password to your journal and they can log on and read your updates.)