Online Breast Cancer Support Network

   Home    Foundation    News    Newsletter    Resources    Sign-In    Tributes    Press    Store
Sign up for our Monthly Email Pink Power
Laughter is the Best Medicine
Walk for Hope
www.patientresource.net
Pink-Link Story at darynkagan.com
Pink-Link Resources 
Here are a list or breast cancer resources the Pink-Link team personally endorses. If you have a suggestion for the breast cancer resources page, please contact us here and we'll be happy to review your recommendation.
Online Organizations Resources
CancerForward
Embodi Works
Cancer Shop USA
Telephone Support from 4th Angel.org
Pink Kitchen Blog
Pink Ribbon Trailblazers
National Lymphedema Network
Blogging about Breast Cancer
BreastCancerTrials.org
Families Facing Cancer
Breast Cancer Care and Research Fund
Metastatic Breast Cancer Support
Pink Ribbon Trailblazers
Fight Pink
Inflammatory Breast Cancer Foundation
Sharsheret
No Surrender Breast Cancer Foundation
Hopes Song
Beyond Boobs!
Inflammatory Breast Cancer Research Foundation
Talking About Cancer Blog
Facing Breast Cancer Together
Survivor Celebration Networking Site
Care to Knit
Dr. Susan Love's Army of Women
Imerman Angels
Stand Up 2 Cancer
Living Beyond Breast Cancer
FORCE
Metastatic Breast Cancer Support
City of Hope
Mayo Clinic Online Information
National LGBT Cancer Network
Friends Helping Friends
Hopeful Expressions
Questions about Reconstruction?
Compassionate Hands and Hearts Organization
Tigerlily Foundation
Be Bright Pink
Annie Appleseed Project
Breast Cancer Stories
Breast Friends
Myself Together Again
JACOB International (Jews Against Cancer of the Breast)
REACH Global (Risk Education & Awareness of Cancer which is Hereditary)
Gilda's Club
HER2 Support
Men Against Breast Cancer
National Coalition for Cancer Survivorship
CancerForward
Founded by survivors and publically-launched on National Cancer Survivors Day in 2010, CancerForward is a non-profit organization that exists to facilitate and support a global community of information-exchange among cancer survivors.
Embodi Works
EmbodiWorks is creating a better world through integrative cancer care education and advocacy to reduce cancer risk and improve cancer-related survival, quality of life, and whole person health care.
Cancer Shop USA
Cancer Shop USA was first conceived when I, Dr. Melanie Bone, was going through my own cancer treatments. Barely 40 years old and with 4 children under the age of 6, I was diagnosed with Stage III breast cancer. I underwent bilateral mastectomies with reconstruction, 6 months of chemotherapy, and 6 weeks of radiation. Even though I am a doctor and surgeon, I learned firsthand about all the side effects of treatment. I was too sick to work during those months so I spent a lot of time thinking about how to make the cancer experience easier.
 
Over time the team at Cancer Shop USA has collected more than 300 special items like this shirt to meet cancer patients’ needs. The saying “necessity is the mother of invention” is true. Many of our products are inspired and developed by cancer patients and survivors and each item is reviewed by a physician to be sure it is safe for cancer patients to use. There is detailed information about each product and why it is effective. The site is also sprinkled with tips from survivors as well.
Telephone Support from 4th Angel.org
Learning that you have cancer can be an overwhelming experience – one that leaves you frightened, vulnerable and alone. The 4th Angel Mentoring Program offers free, one-on-one, confidential outreach and support from someone who has successfully made the same journey you are about to begin – the journey towards recovery.
Pink Kitchen Blog

Many people believe that being healthy takes too much time, talent, or money. The thought of all that extra effort is particularly overwhelming to a person who has battled cancer or another disease.

Lisa Grey knows a thing or two about nutrition. When she was diagnosed with breast cancer, Lisa used nutritious foods and herbs to help her attack the disease. Her goal was to do whatever she could to destroy the cancer and keep it away.

When her tumor shrank in size just a few weeks later, doctors told her that ‘sometimes these things just can’t be explained.’ But Lisa knew the explanation – good nutrition!
 
Check out the Pink Kitchen!
Pink Ribbon Trailblazers
Every woman is entitled to a Mammogram which may save her life
 
The Pink Ribbon Trailblazers are a dedicated group of men and women raising funds to help provide mammograms for uninsured and underserved women in Oakland County , Michigan at St. Joseph Mercy Oakland Hospital in Pontiac , Michigan . While their ride, run, stroll will be an annual event, donations will be accepted all year long. If you would like to sponsor a mammogram or provide a donation to their cause, please send an email to info@pinkribbontrailblazers.com
National Lymphedema Network

The National Lymphedema Network (NLN) is an internationally recognized non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.

The NLN is supported by tax-deductible donations and is a driving force behind the movement in the U.S. to standardize quality treatment for lymphedema patients nationwide. In addition, the NLN supports research into the causes and possible alternative treatments for this often incapacitating, long-neglected condition.

 
Blogging about Breast Cancer
Started by breast cancer survivor, Brenda Coffee, the Survivorship Media Network’s Breast Cancer Sisterhood® represents one sister reaching out to help and empower another by giving them the gift of survivorship. The Breast Cancer Sisterhood’s mission is to revolutionize the way life-saving information and support is disseminated to newly diagnosed breast cancer patients, existing survivors, patients with recurrence, husbands, caregivers, children and extended friends and family.
BreastCancerTrials.org
BreastCancerTrials.org is a not-for-profit online service that helps users to find breast cancer-specific clinical trials that might be right for them. The site offers study summaries, a way for users to share their online health history with research sites, and an alert service that notifies users of recently added clinical trials. BreastCancerTrials.org includes studies sponsored by NCI, public research foundations, and the pharmaceutical/biotechnology industry.
Families Facing Cancer

At Families Facing Cancer, our aim is to provide emotional and practical support to people in the cancer fallout zone, empowering them to transform their experience into a force for good in their lives.  We believe that cancer does not affect just one person – those who are also touched by a diagnosis can include those caring for cancer patients, family, friends and even employees. This is what we mean by the cancer fallout zone.  We believe that those in the fallout zone may tend to discount their own needs – and we know that this can lead to health issues – both physical and emotional. So we believe in integrated cancer care – where the person who has cancer is treated physically, emotionally, mentally and spiritually as needed. And to be truly integrated we believe that care should extend to anyone who is affected by the diagnosis.

Breast Cancer Care and Research Fund
They have created this site specifically for people who are living with breast cancer, are survivors or have been touched in some way by the disease. We aim to educate you about breast cancer, bring you the latest news on research and treatments, and help you become an advocate ... one woman at a time!
Metastatic Breast Cancer Support
Metastatic breast cancer occurs when breast cancer cells enter the blood system and spread to distant parts of the body -- most commonly the lung, bones, liver and brain.   It strikes both women and men.  The disease is not curable and is not considered survivable. Metavivor's mission is
  • To support research with the ultimate goal of transitioning metastatic breast cancer from a terminal condition to a controlled,  chronic disease.

  • To offer a face-to-face support program to persons with metastatic breast cancer living in the Annapolis, Maryland area.

  • To offer advice to persons in other locations, who wish to start their own metastatic breast cancer support programs.

  • To raise public awareness of this often unrecognized and unsupported condition.
Pink Ribbon Trailblazers
We are a dedicated group of men and women raising funds to help provide mammograms for uninsured and underserved women in Oakland County, Michigan at St. Joseph Mercy Oakland Hospital in Pontiac, Michigan.
Fight Pink
We unite with breast cancer survivors, co-survivors, children of survivors, official non-profit community organizations and groups or individuals to support us in our global breast cancer awareness campaign. We connect Breast Cancer survivors, with newly diagnosed breast cancer patients to provide encouragement and support.  Fight Pink shares Survivorship stories through our web site, while raising awareness for Breast Cancer through community events and projects by partnering with local and national organizations dedicated to the cause and searching for the cure to Breast Cancer.  We advocate for the patients needs as well as updating our Fight Pink site daily to keep up with the latest news, legislation and Survivorship stories. Our motto is”Every Fight Counts™.”  www.fightpink.org
Inflammatory Breast Cancer Foundation
Inflammatory Breast Cancer (IBC) is THE MOST aggressive type of breast cancer in which the cancer cells block the lymph vessels in the skin of the breast. This type of breast cancer is called “inflammatory” because the breast often looks swollen and red, or “inflamed”, sometimes overnight.

Please visit the website at http://www.eraseibc.com/
Sharsheret
is a national not-for-profit organizations supporting young Jewish women facing breast cancer.
No Surrender Breast Cancer Foundation
What is No Surrender all about? It is about empowerment, education, survival and hope. As survivors, we give you more than just the facts, we tell you what you need to know in order to fight and survive this disease while keeping your life as sane as possible in a world that has just been turned upside down. We are your Band of Sisters, and once you get to know us, you will know that you have found the right place. Day or night, there is always someone who is online, ready to reach out and help you or spend some time chatting with you. Just jump in and say hi, we will take care of the rest! http://www.nosurrenderbreastcancerhelp.org/
Hopes Song
Hopes Song, a nonprofit organization, has created an online social networking site that allows individuals with cancer, family members, friends and health professionals to come together and share knowledge and support about this major disease. Their mission is to unite as an online community, connect with people, enrich lives and fight this battle as one. Please visit them at www.hopessong.com.
Beyond Boobs!
This online young survivors support group named themselves “Beyond Boobs!” because they didn't want to be defined by their status as breast cancer survivors. Rather, they wanted to convey their power to get beyond the disease that originated in their breasts and get on with living life to the fullest. They also wanted to express that contrary to what our culture may proclaim, the essence of a woman is not contained in her breasts, and that a woman's femininity and worth extend far beyond her outward appearance. Visit them at www.beyondboobsinc.org.
Inflammatory Breast Cancer Research Foundation
The IBC Research Foundation is dedicated to researching the cause of Inflammatory Breast Cancer, IBC, an advanced and accelerated form of breast cancer usually not detected by mammograms or ultrasounds. Inflammatory breast cancer requires immediate aggressive treatment with chemotherapy prior to surgery and is treated differently than more common types of breast cancer.
Talking About Cancer Blog
Check out Doug Gosling's Blog: Talking About Cancer. It's packed with helpful information!
 
www.talkingaboutcancer.com
Facing Breast Cancer Together
the fbctogether site. Our site attempts to provide:rose
  • important Breast Cancer Research site links;
  • links to important Breast Cancer Support sites;
  • information on dealing with grief, medical options, etc.
 
Survivor Celebration Networking Site

Survivor Celebration - Inspiring and Empowering Cancer Survivors

The social networking community to inspire, educate and empower cancer survivors and their loved ones. Click here to join.
Care to Knit
Care to Knit is a non-profit organization whose mission is to provide hand knit and crocheted items to those in shelters, hospitals, nursing homes and hospices. They are now a partner with Pink-Link and provide wonderful pink knit caps, scarves and blankets to survivors going through treatment. If you're a knitter, or just want to donate to this great organization, please visit their website.
 
www.caretoknit.org 
Dr. Susan Love's Army of Women

Breast cancer has been around for decades, but it does not have to be our future. We can be the generation that eliminates breast cancer by identifying what causes this disease and stopping it before it starts. This is your chance to be part of the research that will end breast cancer. Sign up for your sister, mother, daughter, granddaughter, best friend, and the woman you met last week.

Help us eradicate breast cancer once and for all. Join the Army of Women today!

 
Imerman Angels
We connect people fighting cancer (cancer "fighter") with someone who has beaten the same type of cancer (cancer "survivor"). The relationship provides the fighter with the opportunity to ask personal questions and receive encouragement from someone who is uniquely familiar with the situation. Please check out our website at www.ImermanAngels.org.
Stand Up 2 Cancer
Here we stand on the verge of unlocking the answers that will finally conquer the devastation that is cancer.
 
Click here for more information.
Living Beyond Breast Cancer
Living Beyond Breast Cancer, founded in 1991, is a national nonprofit education and support organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life. Programs and services include: a comprehensive educational website, lbbc.org; the toll-free Survivors’ Helpline at (888) 753-LBBC (5222); large  national  conferences; free teleconferences; networking programs; quarterly educational newsletters; publications for medically underserved women; workshops and trainings for healthcare providers; low-cost informational recordings; and the Paula A. Seidman Library and Resource Center. For more information, visit lbbc.org. 
FORCE
FORCE is a national non-profit for women at risk of hereditary breast and ovarian cancer. Check out Facing Our Risk of Cancer Empowered at www.facingourrisk.org.  
Metastatic Breast Cancer Support
Please visit http://www.dragonflysdelights.org for healing and support for women with metastatic disease.
City of Hope
City of Hope, an innovative biomedical research, treatment and educational institution, is dedicated to the prevention and cure of cancer and other life-threatening diseases, guided by a compassionate patient-centered philosophy, and supported by a national foundation of humanitarian philanthropy.  Please click here to find out about the services we offer women affected by Breast Cancer, http://www.cityofhope.org/breastcancer.
Mayo Clinic Online Information
Mayo Clinic provides comprehensive breast cancer screening, evaluation, education and treatment. Mayo Clinic physicians diagnose and treat more than 1,300 new patients with breast cancer each year. Mayo Clinic is among the most active breast cancer research facilities in the world. A team of medical professionals from several specialties provide innovative treatment strategies and supportive care to make patients' medical care as effective and comfortable as possible. Mayo physicians work with patients to develop personalized treatment plans for their unique needs. For example, genetic counseling is available for patients with a family history of breast cancer. Visit http://www.mayoclinic.org/breast-cancer/. 
National LGBT Cancer Network
The National LGBT Cancer Network is the first and only organization in the country addressing the needs of all lesbian, gay, bisexual and transgender cancer survivors and those at risk.  As a group, LGBT people have dramatically increased cancer risks, coupled with decreased screening rate, resulting in cancer being detected at a later stage when it is more difficult to treat.  Once diagnosed, LGBT people face additional challenges with being "out" to their providers and receiving relevant information about the impact of cancer on their sexuality and "families".  The National LGBT Cancer Network advocates for LGBT survivors and trains health care providers in offering more respectful an culturally-competent care.
Friends Helping Friends
When a life-changing event happens, friends and family want to help! The WhatFriendsDo.com webtool is a FREE website that can help family and friends form a "Team" and respond in an organized and helpful
way. Helping a friend through a life-changing event involves lending a hand with meals, transportation
and other tasks. Check us out at http://www.whatfriendsdo.com/
Hopeful Expressions
Hopeful Expressions was founded by two sisters diagnosed with breast cancer.  The company's mission is to provide a center of information and hope to women newly diagnosed or currently undergoing treatment.  We not only provide lists of resources, but also create products such as greeting cards, tote bags and other items to help and support women diagnosed with breast cancer.

http://www.hopefulexpressions.com
Questions about Reconstruction?

            After a year of development, BreastReconstruction.org opened its cyber doors to the world in October.  Their mission is to offer a comprehensive website for women making decisions about reconstruction, while providing the most up-to-date information on surgical advances, and a safe environment where women can connect with each other.  Covering a broad range of reconstruction topics, the site covers everything from types of reconstruction, to tips on preparing for surgery.  Users can find the latest information in the research news section, or share the experience and photos of other women in the personal stories section.  The site offers discussion boards, and in early 2008 live chats will be held monthly.

 
Compassionate Hands and Hearts Organization
Our Mission is to extend our hands and hearts to support those needing help battling breast cancer by improving the quality of life for them and their families. We are located in the Orlando, Florida area. Please check out our website at http://www.compassionatehandsandhearts.org/
Tigerlily Foundation

Founded by a breast cancer survivor, Tigerlily Foundation (Tigerlily) is committed to educating women (of all ages) around the world about breast cancer; and empowering them to celebrate their lives every day by harnessing their personal power. Tigerlily has various programs including our Chemotherapy Buddy Program that assists patients going through treatment; a survivor group that connects and supports those affected by breast cancer, Funds for Families, which provides financial aid to families in need, and our Fabulous Females Program, which empowers and reminds diagnosed women how fabulous and beautiful they are, among others.

Please visit us at www.tigerlilyfoundation.org or call (703) 869-9462.

Be Bright Pink
BeBrightPink.org is a nonprofit organization which supports and educates young women who have the BRAC1 or BRAC2 genetic mutation. These women have an 80% chance of developing breast cancer in their lifetime. The organization was founded by Lindsay Avner at the beginning of 2007.
Annie Appleseed Project
The Annie Appleseed Project, a 501 (c)3 non profit corporation, provides information, education, advocacy and awareness for people with cancer, family and friends interested in, complementary, alternative medicine (CAM), natural therapies from the patient perspective. Latest studies continue to show that a majority of cancer patients use some form of CAM.
Breast Cancer Stories
BreastCancerStories.com, a nonprofit organization, provides a free an online community where people touched by breast cancer can communicate with loved ones and with one another while going through treatment.  The website provides breast cancer patients with their own Web address where they can write and upload photos whenever they feel the need to write; friends and family members the ability to visit a patient’s website, follow their story and leave messages of support; a mechanism for new breast cancer patients to search through an index of stories based on age, type of cancer and type of treatment, and find someone similar to them so they don’t feel so alone.
Breast Friends
Breast Friends is a non-profit organization dedicated to improving the quality of life for breast cancer patients. Breast Friends teaches the friends and family of cancer patients specific ways to offer support, helps them understand what the patient is going through, and suggests useful resources for the patient and her family. The message of Breast Friends is that it's never too late to make contact and provide useful and appreciated support to those we love who are facing this terrible disease.
Myself Together Again
Myself Together Again is one young woman's story of Breast Cancer Recovery and Reconstruction. The Myself Together Again story of delayed breast reconstruction following double mastectomy surgery that appears on these pages was inspired by Denise*, who agreed to have the process photographed so that other young women like her could get an idea of what to expect.  (*Name changed to protect patient's
privacy.) If you need more information about plastic surgery and reconstruction, please visit our website or email info@myselftogetheragain.org.
JACOB International (Jews Against Cancer of the Breast)
Provides awareness of the high risk of hereditary breast and ovarian cancer among Ashkenazi Jewish women and the benefits of genetic testing.  The site offers information about BRCA 1 and 2 mutations and genetic testing, medical and spiritual resources and tools to assess one’s risk through their family medical history. 
www.jacobintl.org
 
REACH Global (Risk Education & Awareness of Cancer which is Hereditary)
Provides awareness of the risk of hereditary breast and ovarian cancer among women and the benefits of genetic testing.  The site offers information about BRCA 1 and 2 mutations and genetic testing, medical and spiritual resources and tools to assess one’s risk through their family medical history.  www.reachglobal.org
 
Gilda's Club
Gilda's Club is a cancer support community for men, women and children with any type of cancer, and their family and friends. Membership is offered, free of charge to people at any stage of their experience with cancer from initial diagnosis through long-term survivorship and bereavement. Through participation in  support and networking groups, lectures, workshops as well as  social events members build social and emotional support and learn to live with cancer - whatever the outcome. There are twenty Gilda's Clubs throughout the US and Canada and seven more in development.
 
HER2 Support
If you have HER2 positive type breast cancer, check out  www.her2support.org for current information about treatment and other options that might be available.
Men Against Breast Cancer
Men Against Breast Cancer (MABC) is the first national non-profit organization designed to provide targeted support services to educate and empower men to be effective caregivers when breast cancer strikes a female loved one; as well as, target and mobilize men to be active participants in the fight to eradicate cancer as a life threatening disease. 1-866-547-MABC(6222)  www.menagainstbreastcancer.org
National Coalition for Cancer Survivorship
As the oldest survivor-led advocacy organization, the National Coalition for Cancer Survivorship is a highly respected authentic voice at the Federal level, advocating for quality cancer care for all Americans and empowering cancer survivors. Visitors to NCCS's website, www.canceradvocacy.org, will find educational resources to help them live with, through and beyond cancer, including the award-winning Cancer Survival Toolbox® and Palliative Care & Symptom Management , a comprehensive guide to living with cancer, covering topics from pain to clinical trials to side effects and more.
Back to Resources Index
FAQ  -  Newsletter  -  Contact Us  -  Site Map  -  Privacy Policy -  Financial Disclosure -  Disclaimer -  Links  -  Banners
Copyright 2005-2010 Pink-Link. All Rights Reserved. 501(c)3 Tax ID#20-2884742