Forum Discussions - Pink-Link Breast Cancer Support Network 2011-08-03T02:08:49Z http://friends.pink-link.org/forum?feed=yes&xn_auth=no What is your kinda of Normal now?? tag:friends.pink-link.org,2011-05-23:2799111:Topic:7107 2011-05-23T17:48:10.439Z Donna Johnstone http://friends.pink-link.org/profile/DonnaJohnstone I chose not to do the support groups offered here.  I found my lump last year on 26 May so the one year mark is coming up quickly. I had so much crap going on when all this happened that I didnt have time to process what was actually going on.  I have not spoken to anyone about this experience cause I didnt want to add to my stress.  I know that sounds stupid now.  I left my husband on 20 May last year and was sleeping on my best friends couch.  6 days later I found a lump went for a mammogram… I chose not to do the support groups offered here.  I found my lump last year on 26 May so the one year mark is coming up quickly. I had so much crap going on when all this happened that I didnt have time to process what was actually going on.  I have not spoken to anyone about this experience cause I didnt want to add to my stress.  I know that sounds stupid now.  I left my husband on 20 May last year and was sleeping on my best friends couch.  6 days later I found a lump went for a mammogram 1 week later and was diagnosed a few days after that. 2 days later our house sold!! so I had to run around and try to buy a condo in between all the appointments!  I couldn't process everything! My surgery was on 14 Jul and I moved into my new house on 6 Aug!!! Thinking back now its amazing how we can do all this stuff with out breaking!  I was diagnosed with Stage 3 IDC with lymph node involvement.  They took 19 and it was in 14.  I'm done my chemo, radiation and now back to work full time. Now I am starting to process all this and cam across this website. uggggggg what a year!!!  I need to start getting back to normal but I have no idea what my normal is anymore.......sooooo much has changed!!! It's always nice to visit with survivors like me... tag:friends.pink-link.org,2011-05-18:2799111:Topic:6326 2011-05-18T16:31:32.746Z Beverly Rahme http://friends.pink-link.org/profile/BeverlyRahme I have never had a support of survivors around me since my breast cancer in 2006 & again in 2009, but I am finding that it really feels good to share with survivors & those just going thru it.  I really enjoy helping others.  Are there any survivors out there who feel the same?  Having Cancer can sometimes get lonely. I have never had a support of survivors around me since my breast cancer in 2006 & again in 2009, but I am finding that it really feels good to share with survivors & those just going thru it.  I really enjoy helping others.  Are there any survivors out there who feel the same?  Having Cancer can sometimes get lonely. Triple Negative.. tag:friends.pink-link.org,2011-05-09:2799111:Topic:6602 2011-05-09T18:52:18.717Z Elizabeth http://friends.pink-link.org/profile/Elizabeth <p>I was wondering if there were others on this board with triple negative cancer? I recently underwent surgery (lumpectomy and sentinel node) and the outcome was Triple Neg IDC. I am between surgery and treatment now and just looking for others that might have similar circumstances.</p> <p> </p> <p>E </p> <p>I was wondering if there were others on this board with triple negative cancer? I recently underwent surgery (lumpectomy and sentinel node) and the outcome was Triple Neg IDC. I am between surgery and treatment now and just looking for others that might have similar circumstances.</p> <p> </p> <p>E </p> tamoxifen tag:friends.pink-link.org,2011-02-14:2799111:Topic:3911 2011-02-14T14:56:49.418Z Melissa Roy http://friends.pink-link.org/profile/MelissaRoy I completed radiation treatment last March & was advised to begin Tamoxifen.  However, I tried it twice & was having palpitations & pain in & around my eyes so I decided to stop.  Anyone have any thoughts on Tamoxifen, good or bad?  Thanks! I completed radiation treatment last March & was advised to begin Tamoxifen.  However, I tried it twice & was having palpitations & pain in & around my eyes so I decided to stop.  Anyone have any thoughts on Tamoxifen, good or bad?  Thanks! What do you do when you are screening your families for help with treatment and they qualify and the next day the patient or child dies before they are ableto get treatment started? tag:friends.pink-link.org,2010-11-11:2799111:Topic:3125 2010-11-11T18:57:50.000Z Kimberley K. Davis http://friends.pink-link.org/profile/KimberleyKDavis I run the Pink Rose Foundation in Augusta, Georgia. I was screening this family for help with money for cancer treatment. Her family met all the qualifications for help. We went to give them the good news and she had passed away the next day. I am still at a loss on wbhat to do oin this situation. I run the Pink Rose Foundation in Augusta, Georgia. I was screening this family for help with money for cancer treatment. Her family met all the qualifications for help. We went to give them the good news and she had passed away the next day. I am still at a loss on wbhat to do oin this situation. Bone metastasis tag:friends.pink-link.org,2010-11-08:2799111:Topic:3089 2010-11-08T20:28:45.000Z Judy Ford http://friends.pink-link.org/profile/JudyFord I have been dealing with breast cancer since 1995 and bone metastasis since 2000. I am interested in treatment possibilities or alternatives for bone mets,dealing with recurrences and pain.  Any information you can share would be appreciated.   Judy I have been dealing with breast cancer since 1995 and bone metastasis since 2000. I am interested in treatment possibilities or alternatives for bone mets,dealing with recurrences and pain.  Any information you can share would be appreciated.   Judy Is anyone planning to go to the Young Survivors' Conference in Orlando? tag:friends.pink-link.org,2010-11-08:2799111:Topic:3081 2010-11-08T19:51:45.000Z Lisa Grey http://friends.pink-link.org/profile/LisaGrey I went to the Young Survivors' Conference in Atlanta last year and had a blast. Will any of you be attending in 2011 in Orlando?<br/> I went to the Young Survivors' Conference in Atlanta last year and had a blast. Will any of you be attending in 2011 in Orlando?<br/> HELP! I need your input on a good Doctor! tag:friends.pink-link.org,2010-09-23:2799111:Topic:2873 2010-09-23T18:17:03.000Z Cindy K http://friends.pink-link.org/profile/CindyKelly <p>And so my journey begins!</p> <p>I was referred to a Doctor, went and sat on the exam table for 2 hours, only to be told by a nurse I didnt have my insurance in place. I was surprised the Doctor never even came in to say hi and introduce himself. I know he cant treat me without my Insurance, but for a Doctor with a supposedly "Big Heart", I felt it cowardly he could not at least come in and introduce himself. I left feeling it was a message from God that he was not the right Doctor to see.…</p> <p>And so my journey begins!</p> <p>I was referred to a Doctor, went and sat on the exam table for 2 hours, only to be told by a nurse I didnt have my insurance in place. I was surprised the Doctor never even came in to say hi and introduce himself. I know he cant treat me without my Insurance, but for a Doctor with a supposedly "Big Heart", I felt it cowardly he could not at least come in and introduce himself. I left feeling it was a message from God that he was not the right Doctor to see. So, this whole week I have spent looking for a Doctor. My Insurance is in place now. I found one Doctor but he doesnt take my type of Insurance, I found another and now he has stopped taking new Patients. So, I am getting referred back to the Doctor that I was turned down with initially, and feel may not be the right choice. I dont have any more time to burn....My lump has increased drastically over the 6 months it took me just to get to this point. Im trying not to stress, or cry over it all. What to do?? Is there any good Doctors someone knows, in the Southern Orange County Area, that take CalOptima Direct Insurance??</p> <p>Cindy</p> <p> </p> Wishing for pen pals tag:friends.pink-link.org,2010-09-10:2799111:Topic:2839 2010-09-10T21:50:09.000Z shy violet http://friends.pink-link.org/profile/shyviolet Hoping to find pen pals from any state or country...I am a two time breast cancer survivor and also took care of my mother +ith ovarian cancer for two years at home... Hoping to find pen pals from any state or country...I am a two time breast cancer survivor and also took care of my mother +ith ovarian cancer for two years at home... I'm not a survivor yet tag:friends.pink-link.org,2010-08-26:2799111:Topic:2829 2010-08-26T17:02:41.000Z Sally Reynolds http://friends.pink-link.org/profile/SallyReynolds I was diagnosed on Tuesday and don't have any information yet except one area is "invasive". I have my first surgeon appt tomorrow. I've chosen to disseminate my diagnosis widely among my many friends because it helps me to feel surrounded by love and good wishes. I'm still really scared, though. Mostly about the treatments. I was diagnosed on Tuesday and don't have any information yet except one area is "invasive". I have my first surgeon appt tomorrow. I've chosen to disseminate my diagnosis widely among my many friends because it helps me to feel surrounded by love and good wishes. I'm still really scared, though. Mostly about the treatments.